Monday 28 May 2012

Processing

Lynn is comfortable at home and she and all the family would like to thank you all for your continued support.
She is in no pain is sleeping and eating well, but because of the steroids & her condition can find it a little difficult to process thoughts at times and this can make her very tired, very quickly.
This is the main reason she is not using the phone.
She gets all your texts and messages and would love to talk to you all, but at this time is simply unable to.

Many thanks again for your understanding and support.

Thursday 24 May 2012

Heavy heart

I write the following with a heavy heart and please forgive me for breaking this news.
All did not go well at Addenbrookes Wednesday.
Lynn's cancer is now at an untenable stage and its rapid growth is now incomptible with any treatment plans available.
She was given the option of continuing on the imunotherapy route or stopping all treatment. With the time she have left, any thoughts of just giving in are not in her nature, so she will continue and we will find out today when this will take place. This may even happen today!
Where are we if we live without hope?
Reality has arrived in our world after many months of denial.
After making a pact between the two of us to of never wanting to know the prognosis, the question that no one should ever have to ask was asked, and the answer is a very short time frame.
So battle lines have now been drawn in the sand, and Lynn is very much up for the fight as we all know she just loves a challenge.
Lynn has not changed as person, she is still the loving, caring and bubbly girl we all know & love, so if you get the pleasure of talking, messaging or meeting the wonderful lady, don't pity her, simply act your normal self and lets all enjoy the time we have available.
There will be plenty of time for grief, but now is not that time, this is Lynn's time! We simply have too much to do, we  have a vey long list and we are less than half way through, Pandas in Edinburgh next!

Wednesday 23 May 2012

Back to Addenbrookes

Lynn continues to gain strength since returning home hospital. She is still very tired and taking things very slowly. We are back at Addenbrookes today for a general oncology check up and to review her treatment plan. If all goes well she may have her 2nd infusion of Ipilimumab tomorrow.

Friday 18 May 2012

Lynn is back at home

Very tired, after loads of physio Lynn is back at chez Buchan.

Thanks for all the messages and she looks forward to continuing her recovery at home.

God bless you all.

Thursday 17 May 2012

More good news

Lynn has been going from stength to strength.
She is now able to walk unaided and is starting to get her energy levels up.
Her appetite is getting better and all the medical staff are very impressed by this amazing women.

If she impresses the Physio's tomorrow she will be allowed HOME!

She will still be a very poorly lady, but stable and around creature comforts.
We may even be able to go to Addenbrookes next week for a check up.

This is truly great news and the answer to some of our prayers, and not in small part to a fantastic medical team at Peterborough Hospital in co-operation with Addenbrookes oncology department.

I will update again as soon as she is out.

Thanks again to all.

Tuesday 15 May 2012

Update 15th May

Lynn had a mostly good day today (Happy face)
She was unfortunately sick just after taking some of her steroid medication. Unable to quantify how much the body has absorbed, the medical staff are not able to give her any more until 8am tomorrow.
So she has been very sleepy and they have had to control her pain via other methods.

She is fully alert and chatting as normal but due to her tiredness will be unable to see visitors for the next couple of days.
There is nothing extra to worry about, she has just been through a tough few days and needs as much rest as possible, I am sure you all understand and she sends her love to you all.

I myself am knackered, so if you all don't mind I will not be putting anymore updates for a while unless her condition or circumstances change.

Thanks for all your support and keep sending the messages, I read them all to her and I am sure it gives her extra strength.

Bless you all

Brian & Lynn

Monday 14 May 2012

WoW

I wish you could all the smile on my face as I wright this update.
Lynn has been taken off all the four types of pain killers, as these are not helping, just making her more tired.
Her syptoms are totally being masked by the steroids!
This means she has had no drugs through IV in to her vains today.
This will be monitored over the next few days and if there are no ill effects (God willing)
SHE WILL COMING HOME!!!!!!!!!!!!

She will still be very very poorly, but at least she will have us 4 men to run around after her in the comfort of her own home.
The again was totally unexpected and must be down to the positive vibes around her and the strength of this amazing women.
Had to pinch myself when given the news to make sure I was not dreaming.
Happy Happy days !

Another good start to the day

Lynn had a very good Sunday, on par with the Saturday and it looks like Monday has started the same way.
I hope I have to write this many many more times.

Enjoy your day & Lynn sends her love to you all!

Saturday 12 May 2012

What a day, Thank you all

Today has to rank up there near our wedding day!
After the devastating news and how poorly Lynn was yesterday, I genuinely thought I had my last conversation with her. I was expecting to go in to see her, hold her hand and just watch her, as yesterday she had said so few words, been almost unconscious the entire day and in pain.
I phoned the hospital early to check how her night had gone, only to discover that she was awake, talking and eating toast! I was in that hospital like a shot!
She was full of it, almost all day. She had loads of visitors and was taking the micky out of most of them and had time for each and every one of them.
She had a visit from Reverand John who married us in January and took great comfort from their time together.
Most of her symptoms are being masked by a massive amount of anti brain swelling steroid.
She continues to amaze me and words can not describe what a happy man that takes his rest tonight.
Thank you all for your messages, texts, phone calls, cards & visits. I let Lynn know about each and every one of them.
Most of all thank you all who said a prayer for my Lynny M, this must have made a difference. Can I be really greedy and please ask you all for a few more of the same? If I get more days like today, I will truly be the luckiest man alive.
Thank you

Friday 11 May 2012

Sorry it's not good news!

Sorry to be the bearer of this news. Lynn is extremely ill at this time and the prognosis is very poor. After an ok day yesterday and a good nights sleep, Lynn did not have a good morning, being sick and not coming fully round from her sleep. The Oncologist took me, Lynn's Mum & Barry to another room to give us the devastating news that in her opinion Lynn had a bleed on the brain. This was confirmed later via a CT scan. Her steroid medication is being quadrupled to her with the pressure. The priority now is for Lynn to be as comfortable and pain free as possible. Please say a little prayer for my Lynny M.

Wednesday 9 May 2012

Update 9th May

Lynn is much improved in general from when she entered hospital on friday. She is now able to eat and drink, keeping both down, helped by medication. She has had mostly restless nights due to head pains and has had little energy. The pain is now being controlled by increased steroids and 24hr a day Morphine, this has given her first peaceful nights sleep in days. She is unable to walk unaided and we are waiting to hear if this is due to the cancer progression or a combination of the side effects, illness and other factors. She is able to comunicate with no problem and has not changed her personality one bit. She has asked me to thank you all for your best wishes and continued support, she knows she is in the right place and getting the best possible treatment and looks forward to feelng more like her normal self. I will update more if anything changes.

Sunday 6 May 2012

Side effects

Updated by Brian Lynn has had a very tough week. She is now suffering some side effects from the new Imunotherapy threatment, on top of the accumilation of the 5 days of brain radiotherapy and to cap it all she has a nasty cold! The main problems were not being able to hold down any food or drink, leading to dehydration and of course not being able to keep down medication. After consultation with Addenbrookes it was decided to get Lynn in to Peterborough hospital for re-hydration and anti-sickness drugs through IV. She is in for the weekend for observation and other tests and I will update further when we have any more news. She is not up for visits at the moment, as she needs as much rest as possible. Thanks for all the messages and phone calls, I pass them all on to her.