One week on the tablets

Well I am now into my routine of 4 tablets in the morning at 10am, two hours after breakfast and then 4 at 10pm at night with no food after 8pm. It is all going really well and by Monday night we could visibly see a reduction in several of the lumps - yes in less than a week!!! Feeling extremely good and the only apparent side effect I seem to be having is some insomnia. I seem to be getting 2 or 3 solid hours of sleep and then feel wide awake. I am however staying in bed and I must be drifting in and out but it does seem a long night and I am then getting up just after 6am. Other than that I have a little pain in my left hand between the wrist and fingers and it was slighltly swollen. However it is minimal pain and nothing I can't cope with. Everyone thinks I am looking good and I am holding down my full time job with no problems although I have reduced my hours slightly as I am getting tired. The other good news is that after 13 years together Brian and I are getting married on 21st January 2012. He proposed to me on my 39 birthday and I will be walking down the aisle on my Dad's arm on my 47th birthday - how wonderfull is that!

Really looking forward to a family Xmas and all the preparations are well under way for my dream wedding.

Let the trials begin!

Lights, Camera, Action!

My first video blog entry with an update on my 7 hours at Addenbrookes

No part of me has been left unchecked, scanned, prodded or probed!

Just click the play button, comments welcome, video critique not!

2 videos about Vemurafenib (my treatment plan)

 

I am a Mutant!

Good news everyone I have the required mutated gene to hopefully go ahead with the clinical trial. Anyone would have thought I had won a gold medal at the Olympics the way I ran down the corridors at work to let all my friends and colleagues know! Lots of hugs were exchanged, Telephone calls to close family brought smiles and brings hope!

I go to Addenbrookes on Wed 7th December for a head, thorax, abdomen and pelvis CT scan followed by a full check by a Dermatologist and then finally meet with the oncologist. All the data is then collated and then the hope is that I start the drug on the 14th December. I will then have monthly scans and checks at Addenbrookes with the hope that the drug stops the spread of the cancer or even reduces it but it will only be for a limited time. The average seems to be about ten months. The drug is eighty percent effective and so this clinical trial is different to others in that all patients take the drug instead of the usual 50 percent placebo effect.

Lynn Masson 1 The Big C 0