Just a very quick update as everything went very well at my appointment today and I have another 3 weeks worth of drugs. I am still on the 1mg steroid and I have been told I can reduce the diuretic to the 20mg but if the fluid gets worse I can then judge this myself and go back upto the 40mg. The steroid does cause fluid retention.
Anyway I am feeling exceptionally good at the moment having just recently had a nice break in Scotland with my Mum. It has certainly done me the world of good and made me realise how much work takes it out of me and I probably still do too much at home too but it is all a learning curve!
Next update evening of Wed 28th March after results of the all important scans!