Thorpe Hall Hospice

Lynn has had a very bad time of it during the last few days.
It has been a gradual decline of energy and strength leading to two seizures yesterday.
She had been laid up in bed for almost 2 solid days, without much sleep & major discomfort, but very little pain. So between the two of us, we made the decision that due to fatigue and the need for a full review of her medication to admit her to Thorpe Hall hospice.
This decision was made easy due to the fact that our good friend Chrissie is a nurse there and took time out of her holiday to show Lynn and I around, introduce us to all the staff and make us feel that this was not a scary place, but one of care and the best place for Lynn to be.
Bless you Chrissie!

Above is a very edited version of Lynn & the family story since the last update, and all of us are almost running on empty, so spare a thought for both the Buchan & Masson family during this difficult time.

Lynn will not be seeing any visitors during the first part of her stay at Thorpe Hall, this is her choice and on the Doctors advice. Seeing visitors at this stage would have a detrimentle effect on any possible benefit during her medication revision.
I will update as and when I can, but please bear in mind that Lynn is a very poorly lady, none of her treatment is working or has been stopped and she is simply being made as comfortable as possible.

Thanks again for all your support and prayers, we are truly blessed to have friends and family like you all.
God bless you all

Update June 10th

Update not mentioned on this video. (Sorry about the waterfall background noise)
Lynn has been extra tired and lethargic this week, her eyesight has been much worse than normal. We investigated what had changed in such a short time, and think we have cracked it. She has a tumour in her armpit that on occasion can bleed, so she was prescribed and anti-bleed tablet. This was the only change in medication, so after reading all the side effects of the drugs we stopped it and hey presto, much better. Saturday was a much better day. This in combination with taking things in her stride and adapting to day to day living will be the way forward.

Processing

Lynn is comfortable at home and she and all the family would like to thank you all for your continued support.
She is in no pain is sleeping and eating well, but because of the steroids & her condition can find it a little difficult to process thoughts at times and this can make her very tired, very quickly.
This is the main reason she is not using the phone.
She gets all your texts and messages and would love to talk to you all, but at this time is simply unable to.

Many thanks again for your understanding and support.

Heavy heart

I write the following with a heavy heart and please forgive me for breaking this news.
All did not go well at Addenbrookes Wednesday.
Lynn's cancer is now at an untenable stage and its rapid growth is now incomptible with any treatment plans available.
She was given the option of continuing on the imunotherapy route or stopping all treatment. With the time she have left, any thoughts of just giving in are not in her nature, so she will continue and we will find out today when this will take place. This may even happen today!
Where are we if we live without hope?
Reality has arrived in our world after many months of denial.
After making a pact between the two of us to of never wanting to know the prognosis, the question that no one should ever have to ask was asked, and the answer is a very short time frame.
So battle lines have now been drawn in the sand, and Lynn is very much up for the fight as we all know she just loves a challenge.
Lynn has not changed as person, she is still the loving, caring and bubbly girl we all know & love, so if you get the pleasure of talking, messaging or meeting the wonderful lady, don't pity her, simply act your normal self and lets all enjoy the time we have available.
There will be plenty of time for grief, but now is not that time, this is Lynn's time! We simply have too much to do, we  have a vey long list and we are less than half way through, Pandas in Edinburgh next!

Back to Addenbrookes

Lynn continues to gain strength since returning home hospital. She is still very tired and taking things very slowly. We are back at Addenbrookes today for a general oncology check up and to review her treatment plan. If all goes well she may have her 2nd infusion of Ipilimumab tomorrow.

Lynn is back at home

Very tired, after loads of physio Lynn is back at chez Buchan.

Thanks for all the messages and she looks forward to continuing her recovery at home.

God bless you all.

More good news

Lynn has been going from stength to strength.
She is now able to walk unaided and is starting to get her energy levels up.
Her appetite is getting better and all the medical staff are very impressed by this amazing women.

If she impresses the Physio's tomorrow she will be allowed HOME!

She will still be a very poorly lady, but stable and around creature comforts.
We may even be able to go to Addenbrookes next week for a check up.

This is truly great news and the answer to some of our prayers, and not in small part to a fantastic medical team at Peterborough Hospital in co-operation with Addenbrookes oncology department.

I will update again as soon as she is out.

Thanks again to all.